in reply to Lukewarm Flystalker 🇨🇦🇧🇧🇲🇽🇬🇱

@bardmoss @VulcanTourist
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no, I don’t.
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But I don’t think the Autism Awareness Months are working either, is all. One analogy would be like having French language awareness events and your participants don’t know they’re English.

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in reply to Kevin Davy

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Short answer, yes! 😈

autistics.life/@punishmenthurt…

This entry was edited (8 months ago)

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in reply to Murdoc Addams 🧛🏻 🇨🇦

@murdoc @anxiousspotato
Then I heard the image was a sad puzzle piece, I thought that's so sad. So I drew my own puzzle piece in my favourite colour. It happily explores space with stars and a moon in a ufo... 👽

I do like the infinity symbol in many colours a lot, but I haven't come up with a nice image yet. Maybe I can plan to do that in april?
Also, what do you think about making april here in the fediverse like we want out autism what-ever- month to look like? We could post more about our hobbies? What hints and observations or good news? 🤔 Or would it trigger you too much because it'd be in April?

in reply to Murdoc Addams 🧛🏻 🇨🇦

@murdoc @anxiousspotato @neurodiversity I recently read "10 Reasons We Need Autistic Pride", and I absolutely LOVE the version of the rainbow lemniscate used as the article header! I've always been fascinated with the lemniscate, both for its intrinsic shape and for its role as a symbol of infinity.

neuroclastic.com/10-reasons-we…

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in reply to Kevin Davy

Not sure how many know this, or how acknowledged it is, but found this looking up about it:

"Did you know that Autism Acceptance Month was originally called Autism Awareness Month? Over time, the focus of the month isn’t just about making people “aware” of autism, but more on the acceptance of autism.

The month kicks off with World Autism Awareness Day, which was originally founded by Dr. Bernard Rimland in 1970 after his own son was diagnosed with autism. The first Autism Awareness Month was held in April 2007 with the goal of educating people on autism and raising awareness of its existence.

Since then, the movement has occurred yearly, with a new goal—to tell the stories of autistic people. Autism Awareness Month now aims to cultivate understanding and acceptance of autism, which includes the wants, needs, struggles, and triumphs of autistic people."

From: transitionabilities.com/world-…

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in reply to Kevin Davy

Darn. That's cool though.

By the way, yes Autism Speaks sucks. As does their hero William Shatner who has attacked autistic people who dared try to inform him they suck (he even hates anyone who uses #actuallyautistic). And their awful 100 Day Kit for Parents (advertised on Sesame Street and such) which encourages parents to grieve for loss of the "non-austistic child" they thought they had. And compare autism to leukaemia... Bleh.

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in reply to Carnivius

@Carnivius grieving your child?! Wtf?! I got mine this @niamhgarvey book, and wrote “welcome to the club!” inside (I highly recommend it for kids)
google.nl/books/edition/Being_…

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in reply to Davey

@davey_cakes @Carnivius I have a disabled daughter; we're both autistic. I have a tiny slivver of sympathy for the idea of greiving for my non-disabled daughter — probably not in the way they mean.

I wish she didn't have to deal with the ME, the PTSD, the EDS and even *in a way* the autism, because her life is harder because of all these things.

But the autism is what makes her, her. The "harder" comes from dealing with everyone else. I love her autistic self; she's just like me…

in reply to Carnivius

@Carnivius That sounds like a horrible choice of words. Grief and mourning for a life you thought you’d have is an ordinary reaction, and a key part of accepting what your life actually is, but framing it as grieving the loss of a theoretical child is just awful.

It seems to me that “autism awareness” has the same issues as most “awareness” campaigns — “adversity porn” that turns people into spectacles and stereotypes. The road to hell is paved with good intentions, as usual. 🙄

in reply to Kevin Davy

This week I attended Business Without Barriers, the UK's largest conference and trade show around disability. Whilst there is so much stigma around neurodivergence, this event was so full of positivity, education, and amazing people, I thought it worth sharing, as often positive stories can get lost. I went on day 2, and even as an #actuallyautistic person, I learned so much from listening. I highly recommend. Also, took 3 people from my company too. Now taking learnings back to push for implementation of some great initiatives naidex.co.uk/naidex-agenda-202…

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in reply to Kevin Davy

My sister, who is also ND, but successful, is kicking me out basically onto the street, in this month of Autism Awareness/Acceptance. It is impossible to reason with her, or even talk to civilly.

I just left a reply to a prospective "intentional community" I'd like to be a part of, when they noted they didn't respond to any of my requests bc I didn't include any references. I had to explain that I'm autistic, and tend to become very isolated when shit gets bad 1/2

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Unknown parent

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Silver Arrows

Unknown parent

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Carnivius

I can't understand it. I just find it hugely offensive to both autistic people and anyone who's suffering from cancer or has lost loved ones to cancer. To even compare the two is just inexcusable. And yet Autism Speaks still does this.
In their "100 Day Kit for Parents" it's apparently ok to be angry at a child with leukemia getting attention and sympathy when your child has been diagnosed as autistic...
Your child ain't dying... To want a bit of support is fine, but this is nuts.
This entry was edited (8 months ago)
in reply to Silver Arrows

@Tooden @anxiousspotato
Article about it: archive.ph/0toCT

Unfortunately I can't find a snapshot of it. There's this:
web.archive.org/web/2008013112…

But that's not the original parody. I did find a similar site, but it almost endorses that nasty hate group, so I'm not going to link it, even though it's kinda funny.

If anyone has a screenshot, please post it. I wonder how that (then) kid is doing now.

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in reply to Kevin Davy

I totally agree with what you are saying BUT I do see an improvement in Ireland- much more focus on own voices. Just last week I was interviewed in the Irish Times about being autistic. Whereas the Guardian and BBC were praising a writer Suzanne O'Sullivan about her book on over-diagnosis. UK and Ireland have very different approaches to autism awareness month.
Here's my interview: irishtimes.com/life-style/peop…

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in reply to Niamh Garvey

@niamhgarvey
No, not really. What there is tends to be about much younger people and even the good interviews and pieces, always seem to want to add the stock definitions of autism, which isn't always helpful and maybe comment on how it's on the increase, without, of course, just giving the obvious reason why. It's definitely better, but still biased away from self-diagnosis.

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in reply to Niamh Garvey

@niamhgarvey
I think it reflects how a lot of people, including obviously those who set policy, just don't know how to think about this. In their lifetimes, it's gone from "rain man", or mad scientist, to bloke next door. Hence, I think, why some seem to prefer viewing it as something that is being over-diagnosed and almost a fad normal people are latching onto. In their minds it takes things back to what it should be, what it used to be.
It takes time for the new, to become normal and different countries are travelling at different rates, if they are being allowed to travel at all.

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in reply to Niamh Garvey

@niamhgarvey
On a related note within the last month or so I have seen a couple of articles in Irish media using identity-first language where in the past they had always used person-first language -even in the otherwise good articles.

I don't know if it was just random, but I hope it wasn't.

[I know it's not a 100% thing, but I have seen a strong preference for identity-first language from autistic people.]

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Niamh Garvey

@adelinej I think it is largely because Ireland's national autism charity AsIAm was set up by autistic people and is mostly run by autistic people, and they are widely politically active and also involved in communities through their autism friendly towns initiative, where locals get trained in autism. Whereas the UK's autism charity is still a bit stuck in old medicalised ways.

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in reply to Kevin Davy

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in reply to AudhdDespiteNoisyAbleism 🇨🇦

@adelinej 😆 Yes! Exactly that!

I think this should have a hashtag. We could use #AutismApril or something in combination with other hashtags like: #actuallyautistic or
#autismacceptancemonth to make the questions&answer toots searchable?

Looking forward to read you answer, and of course I'll write an answer to the questions as well. 😀

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in reply to AudhdDespiteNoisyAbleism 🇨🇦

@adelinej 😆 Yes! Exactly that!

I think this should have a hashtag. We could use #AutismApril or something in combination with other hashtags like: #actuallyautistic or
#autismacceptancemonth to make the questions&answer toots searchable?

Looking forward to read your answer, and of course I'll write an answer to the questions as well. 😀

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in reply to Kevin Davy

I've got 2 sons with PDD-NOS, the eldest has ADD and can hardly read, write and do math, the youngest has ADHD and can learn well. Two opposite characters, two opposite treatment methods needed and a husband who rejected them, ( which led to divorce) made it impossible for me as a single mother without a job to give them the necessary care they needed. At a young age ( 7 and 9 years old) they were ( after a “fight” on my part not to have them put in a regular psychiatric institution and lack of support from family) admitted to a family substitute home, which worked with the principles of Rudolf Steiner's anthroposophy. Now they are adults, almost 40 and 36 , they have become wonderful grown men, with the oldest still in 24/7 care, the youngest almost entirely self-sufficient living with his girlfriend. The toughest decision I had to make in my life and the hardest fights finally turned out to be the best I ever did.

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