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in reply to Kevin Davy

I sense a wee bit of hostility, but it's not violent enough.

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in reply to Lukewarm Skywalker 🇨🇦🇧🇧🇲🇽

@bardmoss @VulcanTourist
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NOT what i meant. 😈
I mean like, Self Awareness Month.
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It’s not the same. They already know they’re white. They don’t know they’re Allistic.

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in reply to Lukewarm Skywalker 🇨🇦🇧🇧🇲🇽

@bardmoss @VulcanTourist
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no, I don’t.
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But I don’t think the Autism Awareness Months are working either, is all. One analogy would be like having French language awareness events and your participants don’t know they’re English.

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in reply to Kevin Davy

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Short answer, yes! 😈

autistics.life/@punishmenthurt…

This entry was edited (1 week ago)

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in reply to Kevin Davy

nope, not exaggerating at all - really downplaying the rash of horrors, like poison ivy - quite itchy.

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in reply to Curious Magpie

@CuriousMagpie
The last few years have thankfully avoided the worst of it here, unlike other places from what I can gather. But yes, it can be distinctly unpleasant.

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Unknown parent

mastodon - Link to source
Kevin Davy
@bughuntercat
All so true. There is far too much about us and far too much industry involved and not enough us simply being ourselves.

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in reply to Kevin Davy

May I ask a slightly related question? The AAC image bank I use at work has an image with puzzle piece for "autistic" and I hate it. Is there any graphic symbol for autism accepted by autistic community?
in reply to Hugs4friends ♾🇺🇦 🇵🇸😷

in reply to Silver Arrows

@Tooden @anxiousspotato
Article about it: archive.ph/0toCT

Unfortunately I can't find a snapshot of it. There's this:
web.archive.org/web/2008013112…

But that's not the original parody. I did find a similar site, but it almost endorses that nasty hate group, so I'm not going to link it, even though it's kinda funny.

If anyone has a screenshot, please post it. I wonder how that (then) kid is doing now.

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in reply to Murdoc Addams 🧛🏻 🇨🇦

@murdoc @anxiousspotato
Then I heard the image was a sad puzzle piece, I thought that's so sad. So I drew my own puzzle piece in my favourite colour. It happily explores space with stars and a moon in a ufo... 👽

I do like the infinity symbol in many colours a lot, but I haven't come up with a nice image yet. Maybe I can plan to do that in april?
Also, what do you think about making april here in the fediverse like we want out autism what-ever- month to look like? We could post more about our hobbies? What hints and observations or good news? 🤔 Or would it trigger you too much because it'd be in April?

in reply to Murdoc Addams 🧛🏻 🇨🇦

@murdoc @anxiousspotato @neurodiversity I recently read "10 Reasons We Need Autistic Pride", and I absolutely LOVE the version of the rainbow lemniscate used as the article header! I've always been fascinated with the lemniscate, both for its intrinsic shape and for its role as a symbol of infinity.

neuroclastic.com/10-reasons-we…

in reply to Kevin Davy

Not sure how many know this, or how acknowledged it is, but found this looking up about it:

"Did you know that Autism Acceptance Month was originally called Autism Awareness Month? Over time, the focus of the month isn’t just about making people “aware” of autism, but more on the acceptance of autism.

The month kicks off with World Autism Awareness Day, which was originally founded by Dr. Bernard Rimland in 1970 after his own son was diagnosed with autism. The first Autism Awareness Month was held in April 2007 with the goal of educating people on autism and raising awareness of its existence.

Since then, the movement has occurred yearly, with a new goal—to tell the stories of autistic people. Autism Awareness Month now aims to cultivate understanding and acceptance of autism, which includes the wants, needs, struggles, and triumphs of autistic people."

From: transitionabilities.com/world-…

in reply to CynAq🤘

@CynAq @murdoc I hear you, and individual Autists, just like many individual LGBTQAI+ folk, may be safer in the closet. But collectively, we are safe only when we can be open about who we are.

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in reply to Callisto

@callisto @murdoc I’m not even saying we individually can be safer in the closet. I’m just expressing my wish to be shielded from soulless state systems precisely so that we can all be open about who we are.

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in reply to Kevin Davy

Can I just ask how you even were able to type that much text into a single post? 😮
in reply to Kevin Davy

Darn. That's cool though.

By the way, yes Autism Speaks sucks. As does their hero William Shatner who has attacked autistic people who dared try to inform him they suck (he even hates anyone who uses #actuallyautistic). And their awful 100 Day Kit for Parents (advertised on Sesame Street and such) which encourages parents to grieve for loss of the "non-austistic child" they thought they had. And compare autism to leukaemia... Bleh.

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in reply to Carnivius

@Carnivius
Indeed. They might as well revert back to calling us changelings and using magic to try and deal with us.
Minds carved from ignorance and fear.
in reply to Carnivius

@Carnivius grieving your child?! Wtf?! I got mine this @niamhgarvey book, and wrote “welcome to the club!” inside (I highly recommend it for kids)
google.nl/books/edition/Being_…

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in reply to Carnivius

@Carnivius
"encourages parents to grieve for loss of the "non-austistic child" they thought they had. "

Jesus fuckin Christ.

Not every day is a picnic but if anyone suggested I do that about my kid I'd fucking deck them.

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in reply to Davey

@davey_cakes
I'm reminded of this book "I Wish My Kids Had Cancer: A Family Surviving the Autism Epidemic" by some dickwad Michael Alan in 2008. I wonder what his kids think about that today.

goodreads.com/book/show/633016…

in reply to Kevin Davy

@Carnivius I think the first I ever heard of Autism Speaks was in a Chris Packham doc about autism and he immediately recognised their approach as a bit fucked up. All about making kids mask up and act as "normal" as possible.

Kept hearing bad things since too but fuckin hell, the bad things keep coming.

in reply to Davey

It's why many in the community consider them a hate group.
This entry was edited (1 week ago)
in reply to Davey

@davey_cakes Autism Speaks likes to claim they're a lot better now than when they made this 2009 video (which William Shatner at first claimed was a fake). But all I've seen is evidence (like that 100 Day Kit) that they haven't really progressed much at all.

youtube.com/watch?v=9UgLnWJFGH…

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in reply to Carnivius

@Carnivius Ugh, fuck those guys! I think it's time for a new "fuck that guy" mug; I say it so often @davey_cakes @pathfinder
in reply to Davey

@davey_cakes @Carnivius ma boy Chris! I have his back garden nature reserve and I love it! I haven't really watched him on TV since I was a kid (Really Wild Show), but I'm glad he's in the A Team!
in reply to Carnivius

@Carnivius Oh My Dawg! That is horrendous! Also, understandable in a hideous way. Cancer garners sympathy. Autism, at any time, in certain spheres, garners the opposite. A two-headed calf would be more popular. We're not all that far from mobs with pitchforks and burning branches.
I hope he learned that he had entirely the wrong attitude, or that his children escaped him and his community. @davey_cakes @pathfinder
in reply to Hugs4friends ♾🇺🇦 🇵🇸😷

I can't understand it. I just find it hugely offensive to both autistic people and anyone who's suffering from cancer or has lost loved ones to cancer. To even compare the two is just inexcusable. And yet Autism Speaks still does this.
In their "100 Day Kit for Parents" it's apparently ok to be angry at a child with leukemia getting attention and sympathy when your child has been diagnosed as autistic...
Your child ain't dying... To want a bit of support is fine, but this is nuts.
This entry was edited (1 week ago)
in reply to Carnivius

@Carnivius It is all screwed around. Plus, this just drives autistics further out into the wilderness.
in reply to Davey

@davey_cakes @Carnivius Maybe they can first grieve for themselves and the ability they never had to engender Allistic kids.
in reply to Davey

@davey_cakes @Carnivius I have a disabled daughter; we're both autistic. I have a tiny slivver of sympathy for the idea of greiving for my non-disabled daughter — probably not in the way they mean.

I wish she didn't have to deal with the ME, the PTSD, the EDS and even *in a way* the autism, because her life is harder because of all these things.

But the autism is what makes her, her. The "harder" comes from dealing with everyone else. I love her autistic self; she's just like me…

in reply to Carnivius

@Carnivius That sounds like a horrible choice of words. Grief and mourning for a life you thought you’d have is an ordinary reaction, and a key part of accepting what your life actually is, but framing it as grieving the loss of a theoretical child is just awful.

It seems to me that “autism awareness” has the same issues as most “awareness” campaigns — “adversity porn” that turns people into spectacles and stereotypes. The road to hell is paved with good intentions, as usual. 🙄

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in reply to Kevin Davy

This week I attended Business Without Barriers, the UK's largest conference and trade show around disability. Whilst there is so much stigma around neurodivergence, this event was so full of positivity, education, and amazing people, I thought it worth sharing, as often positive stories can get lost. I went on day 2, and even as an #actuallyautistic person, I learned so much from listening. I highly recommend. Also, took 3 people from my company too. Now taking learnings back to push for implementation of some great initiatives naidex.co.uk/naidex-agenda-202…

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in reply to Kevin Davy

Whether or not my neurotypical fellow hoomans engage with anything in particular has no practical value to me. Because they are stupid. 🤷‍♂️

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in reply to Kevin Davy

The “superpower” thing gets me every time.
Mate.
I’m not superhuman.

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in reply to Wonderdog

@caity Yes, the implication that we can only succeed because of it, really is a special type of condescention.

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in reply to Wonderdog

@caity I had a well-intentioned extended family member ask the question of my "superpower". I was dumbfounded, as I'm just me, with certain hyper focuses and limitations.

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Unknown parent

in reply to Kevin Davy

I've got to say that we are so lucky in Ireland that this narrative has changed and Autism Awareness month really has become more about teaching the public properly. I still hear a lot of complaints about how it's done in UK and US but hopefully it will change.

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in reply to Kevin Davy

absolutely. Although I look at the US and wonder could it go the other way.

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in reply to Niamh Garvey

@niamhgarvey I fear for the states, yes. I think the vile industries that profit from us will only get more powerful and the conversation is going to revert back to whether people have the good kind of autism, functional and capable of working, or the bad.

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in reply to Kevin Davy

My sister, who is also ND, but successful, is kicking me out basically onto the street, in this month of Autism Awareness/Acceptance. It is impossible to reason with her, or even talk to civilly.

I just left a reply to a prospective "intentional community" I'd like to be a part of, when they noted they didn't respond to any of my requests bc I didn't include any references. I had to explain that I'm autistic, and tend to become very isolated when shit gets bad 1/2

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in reply to mrpieceofwork

Maybe I should also mention the theme of this month. Would be a good teaching lesson, Shit, they may even be autistic themselves. Who knows!

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in reply to mrpieceofwork

@mrpieceofwork I'm sorry to hear this. It's a level of shit that shouldn't be happening. But unfortunately all too often does :bear_hugs:

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in reply to Kevin Davy

I totally agree with what you are saying BUT I do see an improvement in Ireland- much more focus on own voices. Just last week I was interviewed in the Irish Times about being autistic. Whereas the Guardian and BBC were praising a writer Suzanne O'Sullivan about her book on over-diagnosis. UK and Ireland have very different approaches to autism awareness month.
Here's my interview: irishtimes.com/life-style/peop…
in reply to Niamh Garvey

@niamhgarvey
The language to explain my life. Such a brilliant and true way of describing it and what a wonderful article. It just goes to show what can and should be done. ❤️

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in reply to Niamh Garvey

@niamhgarvey
No, not really. What there is tends to be about much younger people and even the good interviews and pieces, always seem to want to add the stock definitions of autism, which isn't always helpful and maybe comment on how it's on the increase, without, of course, just giving the obvious reason why. It's definitely better, but still biased away from self-diagnosis.

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in reply to Kevin Davy

It's weird how neighbouring countries are so different. And that repeats worldwide. It baffles me tbh.

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in reply to Niamh Garvey

@niamhgarvey
I think it reflects how a lot of people, including obviously those who set policy, just don't know how to think about this. In their lifetimes, it's gone from "rain man", or mad scientist, to bloke next door. Hence, I think, why some seem to prefer viewing it as something that is being over-diagnosed and almost a fad normal people are latching onto. In their minds it takes things back to what it should be, what it used to be.
It takes time for the new, to become normal and different countries are travelling at different rates, if they are being allowed to travel at all.

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in reply to Kevin Davy

I think that too. It annoys ne a lot, given how recent a diagnosis autism is- not even 100 years old, and yet people's minds are closed to how it has evolved as a diagnosis (and that self-identification is valid).

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in reply to Niamh Garvey

@niamhgarvey
All too often it's because of how it is framed, that is restricting people's ability to change. We've moved beyond the medicalisation of it, but the language hasn't.

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in reply to Niamh Garvey

@niamhgarvey
On a related note within the last month or so I have seen a couple of articles in Irish media using identity-first language where in the past they had always used person-first language -even in the otherwise good articles.

I don't know if it was just random, but I hope it wasn't.

[I know it's not a 100% thing, but I have seen a strong preference for identity-first language from autistic people.]

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in reply to Niamh Garvey

This part hit home for me especially (not a new father, but still true):

"I do think it’s more common for that to hit with women, but I think it also happens to new fathers who are autistic. We really need time to indulge in our special interests because it is what we need to regulate ourselves.”

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in reply to avuko

@avuko Took me years to figure out I needed my special interests!!!

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in reply to Niamh Garvey

@niamhgarvey
Only just now noticed you are also the author of "Looking After Your Autistic Self". 🤦‍♂️

That book has helped me a lot after I got my diagnose (late in life).

I personally highly recommend the book, and thanks for your honest voice.

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in reply to Niamh Garvey

@niamhgarvey Do both of you have an idea/hypothesis why your countries are different?

And Niamh why there is now an improvement in Ireland?

in reply to Chroniques autistes 🇨🇦

@adelinej I think it is largely because Ireland's national autism charity AsIAm was set up by autistic people and is mostly run by autistic people, and they are widely politically active and also involved in communities through their autism friendly towns initiative, where locals get trained in autism. Whereas the UK's autism charity is still a bit stuck in old medicalised ways.

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in reply to Niamh Garvey

@niamhgarvey @adelinej I believe that in a Level 2 course about autism I did 2 years ago (UK), Ireland was considered as the country with more autistic diagnosis for children (maybe the number was around 20% of children being autistic).
More diagnosis could come from more knowledge and representation.
in reply to Cattz

@Cattz @adelinej latest figures in Ireland this March found that 1 in 20 kids here are diagnosed autistic now. Most definitely from increased awareness.
in reply to Kevin Davy

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in reply to marionline

@marionline I love your idea! Let’s make this month OUR month and not their. Will answer to the questions later!

@actuallyautistic

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in reply to Chroniques autistes 🇨🇦

@adelinej 😆 Yes! Exactly that!

I think this should have a hashtag. We could use #AutismApril or something in combination with other hashtags like: #actuallyautistic or
#autismacceptancemonth to make the questions&answer toots searchable?

Looking forward to read you answer, and of course I'll write an answer to the questions as well. 😀

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in reply to Chroniques autistes 🇨🇦

@adelinej 😆 Yes! Exactly that!

I think this should have a hashtag. We could use #AutismApril or something in combination with other hashtags like: #actuallyautistic or
#autismacceptancemonth to make the questions&answer toots searchable?

Looking forward to read your answer, and of course I'll write an answer to the questions as well. 😀

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in reply to marionline

This entry was edited (2 days ago)

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in reply to Kevin Davy

I've got 2 sons with PDD-NOS, the eldest has ADD and can hardly read, write and do math, the youngest has ADHD and can learn well. Two opposite characters, two opposite treatment methods needed and a husband who rejected them, ( which led to divorce) made it impossible for me as a single mother without a job to give them the necessary care they needed. At a young age ( 7 and 9 years old) they were ( after a “fight” on my part not to have them put in a regular psychiatric institution and lack of support from family) admitted to a family substitute home, which worked with the principles of Rudolf Steiner's anthroposophy. Now they are adults, almost 40 and 36 , they have become wonderful grown men, with the oldest still in 24/7 care, the youngest almost entirely self-sufficient living with his girlfriend. The toughest decision I had to make in my life and the hardest fights finally turned out to be the best I ever did.

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in reply to Wilhelmina58

@happyhippie
I'm glad they were able to get the help they needed and it just goes to show how different we all are.

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