Tomorrow marks 5 years since I got sick. As a patient, you often need to stay focused in the present, adapting your days and life accordingly, but it does happen that you reflect on how different life looks now compared to then. On days like this, it feels like a good opportunity to share a bit and truly show how this virus affects people, especially to raise awareness about long COVID/post-COVID. So here are some info in bullet points:
ā¢ As a freelance musician, it was uncommon for me to be home for more than some weeks at a time ā Now it can take weeks before I even get outside my door.
ā¢ I used to travel around the world with my double bass ā Now itās myself that I roll around (wheelchair indoors, electric wheelchair outdoors).
ā¢ Throughout my life, I have worked in care and taking care of people ā Now I am the one who needs home-care and assistance.
ā¢ I used to be quite an extreme omnivore (as some can
Tomorrow marks 5 years since I got sick. As a patient, you often need to stay focused in the present, adapting your days and life accordingly, but it does happen that you reflect on how different life looks now compared to then. On days like this, it feels like a good opportunity to share a bit and truly show how this virus affects people, especially to raise awareness about long COVID/post-COVID. So here are some info in bullet points:
ā¢ As a freelance musician, it was uncommon for me to be home for more than some weeks at a time ā Now it can take weeks before I even get outside my door.
ā¢ I used to travel around the world with my double bass ā Now itās myself that I roll around (wheelchair indoors, electric wheelchair outdoors).
ā¢ Throughout my life, I have worked in care and taking care of people ā Now I am the one who needs home-care and assistance.
ā¢ I used to be quite an extreme omnivore (as some can attest toš) ā Now I can count the foods/ingredients I can tolerate on both hands.
ā¢ Before I got sick, I was classified as overweight according to BMI ā Now I struggle to stay just above the underweight line.
ā¢ Mobility aids, vasodilator medication, home care, and senior discounts were probably not on my "bucket list" to check off before I turned 40 ā But I managed to check them all off.
ā¢ I did have some medications before I got COVID, but now I have 15(!) different medications to help me stay relatively stable from symptoms related to my heart, lungs/airways, digestive issues, to counteract allergic reactions, and to assist with mental and physical stamina.
ā¢ I rarely needed to rest to get through the days ā Now entire days are dedicated to resting and maintaining a routine to manage some simple tasks, things that were previously taken for granted and not even considered strenuous.
ā¢ It didnāt go many days without me playing the double bass ā After trying a bit in the first half of the year I got sick, I can now count on one hand how many times Iāve even plucked a few notes on it since then.
ā¢ Playing concerts and attending colleagues' concerts was a big part of my life, both professionally and socially ā The number of concerts Iāve attended in the last 5 years can also be counted on one hand.
ā¢ I used to experiment a bit with sinewaves and psychoacoustics ā Now itās the tinnitus in my head that provides the sinewaves.
ā¢ I used to find it relatively hard to motivate myself to exercise regularly ā Now I would do anything just for my body to respond normally to even the smallest, simplest movement exercises (For those who donāt know, I tried various kinds of "training" in the first 3 years, but despite adjustments and very light exercises while lying down, I eventually had to realize that it just makes me worse).
"You have to be healthy to be able to endure being sick," was a phrase I had heard before I got sick, but I didnāt really understand its meaning until I experienced how you have to fight for everything (And I had no direct "illusions" about how healthcare works, due to experience both professionally and through family).
I want to reiterate that this text is mainly to show how different the worlds then and now are. I am "used" to how my situation looks and live accordingly. I often describe my situation as "fairly stable at a very low level."
I also want to add that I am truly not alone. Fresh statistics from the swedish polling institute SIFO today show that over 280,000 people are estimated to have post-COVID in Sweden. Since it is an umbrella diagnosis, the disease picture varies for many. But the idea that itās just a bit of "lingering symptoms" is really not true, and I know (unfortunately) several people who have significantly worsened recently, 5 years into their illness, and who have had to be hospitalized lately.
We need to take this more seriously!
Do you feel like you want to do something for us with Post-COVID? If you live in Sweden, Please consider donating to the Swedish COVID Association (Svenska Covidfƶreningen), which does an absolutely ENORMOUS job.
Swish: 123 217 81 35
If you live somewhere else, find relevant patient organisations and advocacys in your are to connect with and support.
Do you feel you can do more? Email a political decision-maker, try to influence in various ways. Spread information and knowledge! Etc., etc.
Thank you to those who took the time to read this post! šā„ļø
Elon Muskās X (formerly Twitter) is blocking links to Signal.me, a URL shortener used by the private messaging app Signal that allows users to send out a
Oh, and btw, check out #Signal, an open source, not for profit messaging, privacy focused app. It could easily replace whatsapp, messenger, skype if you still use any of those services!
"Among the many targets of the executive orders from Trumpās first few weeks in office are the over 70 million adults in the United States who report having a disability. Thatās about one in four American adults, according to 2022 data from the Centers for Disease Control and Preventionāpeople who now face threats to their employment, education, and more." nonprofitquarterly.org/disabilā¦ #DEI #DisabilityRights #HumanRights #HealthEquity #Diversity #USPol
Gaza is facing a water crisis after Israeli forces destroyed most of its infrastructure, leaving facilities from wells to waste-water plants in ruins.
Amid an overwhelming water shortage, residents of Gaza City's neighbourhood al-Shujayea are digging a well among the ruins - hoping to secure a vital water source.
Al Jazeeraās Ibrahim Al Khalili spoke to Palestinians in Gaza City struggling to survive and repair what's left.
Auf YouTube findest du die angesagtesten Videos und Tracks. AuĆerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.
Seth Meyers just uploaded the comic book version of Project 2025 online, and said: "Project 2025 is too long to read which is why it's great that a bunch of comic book creators got together to show you exactly how scary is." Here is a link to the comic book version of Project 2025.
Clara hƶll upp en banderoll under en protest mot supperrikas resor med privatjet. Fƶr detta hotas hennes familjs framtid i Sverige. Nu fĆ„r hon upprƤttelse i ett brev frĆ„n FN som riktar skarp kritik mot Sverige. ā Vi stod pĆ„ rƤtt sida av historien.
āThe Canary has spoken to a doctor who is crowdfunding a legal challenge after his NHS bosses sought to punish him for speaking out on Israelās genocide in Gazaā
Israel has forcibly displaced more than 20,000 Palestinians from the Jenin refugee camp in the northern West Bank, a Palestinian official said on Sunday.
"The (Israeli) occupation has entirely destroyed the Jenin refugee camp and forcibly displaced over 20,000 residents, leaving behind their homes, documents, and personal belongings," Jenin Deputy Governor Mansour al-Saadi told the Voice of Palestine radio.
I don't think what's happening in the #WestBank is getting enough coverage. It's deeply worrisome. #Israel has forcibly driven tens of thousands of families from their homes and the #IOF is leaving behind a trail of immense destruction. The #Jenin refugee camp is now almost a ghost town. And it's doing the same in other communities in the West Bank. The #ceasefire in #Gaza is giving the wrong impression that the #Zionist atrocities are in a lull period, but that is not true.
I have been talking about the American/Israeli settlers who have been burning down homes and killing Palestinians for a couple of years now. Ben Gvir is an animal.
I really wanna recommend DuckDuckGo as an alternative to Google Search and also to use their web-browser.
Im so sick and tired of my userdata being sold off by big-tech earning money of it.
The browser also detects all attempts to get info on your web-activity and must say Im shocked how often this happens and how many attempts for basically every website, this is tried. (And this is despite if you say no to cookies!). Please don't forget to continue to say no to cookies though! (If you don't need them for something of course)
Duckduckgo also have other features, like using different AIs without letting them get your info and also to watch for example youtube without tracking all your activity.
Worth a try if you are as tired of big-tech as I am!
yeah, donāt get distracted by the weapons part. They could do a u-turn on that making it seem like a victory for us, while quietly clearing the way for Google to provide AI for surveillance (also mentioned in the article you linked).
Why? Because they want a piece of the government funding Larry has his eyes on:
Norwegian club Bodo/Glimt announced that it is donating ordinary ticket revenues from the 23 January UEFA Europa League game against Israelās Maccabi Tel Aviv to humanitarian aid projects in Gaza, Anadolu reported.
āGlimt cannot, and will not, be unaffected by the suffering and violations of international law that are taking place in other parts of the world,ā read a club statement on Saturday.
Norwegian club Bodo/Glimt announced that it is donating ordinary ticket revenues from the 23 January UEFA Europa League game against Israel's Maccabi Tel Aviv to humanitarian aid projects in Gaza, Anadolu reported....
āHind Rajab is not just another casualty in a war that has already claimed far too many lives,ā wrote Dr Suleiman.
āShe is the Anne Frank of Gaza, a child whose final moments should haunt the conscience of the world. Just as Anneās diary bore witness to the horrors of Nazi persecution, Hindās last phone call is a testament to the atrocities of our time. And like Anne, her story must be told, not just for the sake of memory, but for justice.ā
Every day in Palestine is an anniversary marking a tragedy or killing that is so horrific that it stops people in their tracks around the world. This article is a...
How to active the 'BlueSky bridge' to this Friendica instance?
When using the default webbased GUI, set to English; Go to your menu profile settings (right upper corner). Select 'settings' (left side) Go to 'social networks' Select 'Bluesky import/export'
Here you can configure the settings for Bluesky. This assumes you have an account at Bluesky.
You need to fill in your Bluesky handle. ( Like yourhandle.bsky.socia ) For the 'Bluesky app password' go to the settings of your BlueSky account . Pick 'settings'. Then 'Privacy and security' . Create a specific password for the BlueSky addon at Friendica
.... save it. And it should work.
The first line of the section text should indicate succes. When you go later back to this section you will see at the top o
How to active the 'BlueSky bridge' to this Friendica instance?
When using the default webbased GUI, set to English; Go to your menu profile settings (right upper corner). Select 'settings' (left side) Go to 'social networks' Select 'Bluesky import/export'
Here you can configure the settings for Bluesky. This assumes you have an account at Bluesky.
You need to fill in your Bluesky handle. ( Like yourhandle.bsky.socia ) For the 'Bluesky app password' go to the settings of your BlueSky account . Pick 'settings'. Then 'Privacy and security' . Create a specific password for the BlueSky addon at Friendica
.... save it. And it should work.
The first line of the section text should indicate succes. When you go later back to this section you will see at the top of that section 'Communication issues with the personal data server service (PDS): '
It should still work.
Note that the option available to change your BlueSky handle to your Friendica.world handle at BlueSky currently does not work.
How to follow a BlueSky account?
Most easy way is to just follow people on the BlueSky platform.
But on Friendica self; go to the 'contacts' section (top menu, people icon) Left side, option 'Add new contact' Just add there the BlueSky handle. And press 'connect'.
How to post also to BlueSky?
When you post to Friendica when using the default small compose window you have the option to select to post also on BlueSky in the tab 'permissions'. At least if you enabled that option in the Bluesky addon section.
You can also there select do post by default also to BlueSky. If you post something that is to long for a BlueSky message it will be automatically divided in several Bluesky posts.
If you use the large 'Compose new post' compose window (without the tabs at the top) the option for BlueSky is found at the end of the window.
Press on the small button with 3 dots left of the 'set your location' box. Now you will see the 'Post to Bluesky' option.
So far I understand you cannot follow some accounts. You connect your BlueSky account or not.
The solution I see is create a new BlueSky account. And connect that with Friendica.
And yes, it is a two way connection. You see the BlueSky post in the Friendica GUI. Indicated as BlueSky with an icon in the right upper corner of the post. And you respond to those post via Friendica to BlueSky.
There seems to be a delay before it shows up at the BlueSky end.
I follow at least one bluesky account here without a bluesky account myself. I DM'd the person using the bridge, which is what the bridge says to do. I don't know whether the bluesky person had to do anything in response, but I know it works.
Sorry, how did you mean "DM'd using the bridge? Yoy say you don't have Bluesky handle, sp you don't have to login then? But where do you actually "use the bridge"?
Sure, I will write this in a way so this can be used in a user manual;
How to active the 'BlueSky bridge' to this Friendica instance?
When using the default webbased GUI, set to English; Go to your menu profile settings (right upper corner). Select 'settings' (left side) Go to 'social networks' Select 'Bluesky import/export'
Here you can configure the settings for Bluesky. This assumes you have an account at Bluesky.
You need to fill in your Bluesky handle. ( Like yourhandle.bsky.socia ) For the 'Bluesky app password' go to the settings of your BlueSky account . Pick 'settings'. Then 'Privacy and security' . Create a specific password for the BlueSky addon at Friendica
.... save it. And it should work.
The first line of the section text should indicate succes. When you go later back to this section you will see at the top of that section 'Communication issues with the personal data server service (PDS): '
It should still work.
How to follow a BlueSky account?
Most easy way is to just follow people on the BlueSky platform. But on Friendica self; go to the 'contacts' section (top menu, people icon) Left side, option 'Add new contact' Just add there the BlueSky handle. And press 'connect'.
How to post also to BlueSky?
When you post to Friendica when using the default small compose window you have the option to select to post also on BlueSky in the tab 'permissions'. At least if you enabled that option in the Bluesky addon section.
You can also there select do post by default also to BlueSky. If you post something that is to long for a BlueSky message it will be automatically divided in several Bluesky posts.
A key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trumpās administration. The Household Pulse Survey, a data collection effort by the U.
@jorgaborg you should check your privilege bro. Don't assume I'm ok with murder. putting 10 bullets per pound of meat just seems excessive. Were these very small bullets?
@Derp @jorgaborg You posted a ridiculous sarcastic comment on the image I shared and your timeline is full of similar type of comments, then act surprised when I thought it was anything other than disgusting.
@Johan_E_M @lisaullen @Johan_Moir it takes me to the post of the event (not event itself) on friendica where i can also see the thread comments from mastodon
The 3 symbols to the down right in my previous pic I guess is "attending, not attending and maybe", because they are normally not there.
It seems like it doesn't create an event the way we are used to see them and rather makes them into a post. But then the host (and hopefully others attenting) will get them in their personal calendar if they "accept".
Nah, I just made a very simple test, trying out the Event calendar in Friendica and how that would look if it was tried to be accessed from here (if anything would show up at all) so I tagged John and Lisa to ask them what they saw.
(With "hobby-amateur" I mean "no skills, just curiousš)
And this is how it looks for different options while creating. Very "basic".
The last one with my profile on it is the "finished" layout before sharing it and also how it looks when opening from the calendar.
So, back to my point: I guess its *kind of* possible to share events to mastodon but the receiving end cant answer digitally to the host if they're planning on attending in the actual event and in that case needs to put a manual note in cal or bookmark the original post.
that's a brutally ugly interface š ā cool you are seeing what works! My sense is that a big part of how fb events worked, was the shared-to-timeline rsvp actions and ability to send invites that helped to make event engagement visible amongst the ordinary flow of the timeline...
Agreed. This calender is like a lousy 90s editionš
But then Im on a mobile web-interface as well, but haven't found an android app running Friendica that has the "create event" function enabled. "Racoon" (android) was the best I found, but there you could only access cal, not making events. And that app lacks heaps of the other nice Friendica functions! Maybe you know someone who could build a decent app?š (Or a better federated platform?š )
Donald Trump has invited Benjamin Netanyahu to be the first foreign leader to visit the White House, in a major concession to a US ally who is wanted by the international criminal court for war crimes.
The invitation was made in a letter from the US president, which invited the Israeli prime minister to come to the White House on 4 February.
āIt will be my honor to host you as my first foreign leader during my second term,ā the letter read.
Palestinians wait to head back to their homes in northern Gaza by vehicle through Salahudeen Road in the central Gaza Strip, January 27. REUTERS/Hatem Khaled
Palestinians carry belongings as they arrive on foot while making his way back to his home in the northern Gaza in Gaza City, January 27. REUTERS/Dawoud Abu Alkas
A Palestinian girl looks out of a vehicle as she waits other people to be allowed to return to their homes in northern Gaza after they were displaced to the south at Israel's order during the war, amid a ceasefire between Israel and Hamas, in the central Gaza Strip. REUTERS/Hatem Khaled
Jus look at ALL that wasted Beach front property wasted on these dogs!!! Says the GENOCIDAL ZIONISTS!!! ZIONISM ain't JUDAISM, Zionists be like this current GOP FREAK SHOW on STEROIDZ here in U.S.
My daddies side of family is Eastern Band Cherokee, Vance ain't no fuckin Appalachian, he jus another GOP ASS lickin Savage!!!
@stanleyHootzz In that quote by Henry Wallace replace "FASCIST" with "THE RULING CLASS OF BRITISH IMPERIALISM"
Doesn't it still fit? --- Winston Churchill, 1914, just prior to WWI:
āWe have got all we want in territory, and our claim to be left in unmolested enjoyment of vast and splendid possessions, mainly acquired by violence, largely maintained by force, often seems less reasonable to others than to us.ā
This lecture was delivered by Nick Beams, the national secretary of the Socialist Equality Party of Australia and a member of the WSWS Editorial Board, at the Socialist Equality Party/WSWS summer school held August 14 to August 20, 2005 in Ann Arbor,ā¦
@stanleyHootzz ... The historic function of fascism is to smash the working class, destroy its organizations, and stifle political liberties when the capitalists find themselves unable to govern and dominate with the help of democratic machinery. ...
THE COLLAPSE OF BOURGEOIS DEMOCRACY (Leon Trotsky 1934)
@stanleyHootzz IMHO memes about the "deep State" never talk about the material interests of Wall Street in the "surface State" and always tacitly imply the capitalist class is omnipotent, which is what the ruling class wants people to believe so they won't fight. -- āIn the period of crisis the hegemony of the United States will operate more completely, more openly, and more ruthlessly than in the period of boom.ā Leon Trotsky, 1928 wsws.org/en/articles/2016/07/1ā¦
We publish here the preface to A Quarter Century of War: The US Drive for Global Hegemony, 1990-2016 by David North, the chairman of the international editorial board of the World Socialist Web Site.
@johnwilsonwsws PIMP-putins Daughter Fuckin Traitor Trash tRUMP is the steamy pile of Shiut Shitcanning America. Stupid Fuckin GOP COCKSUCKERZ!!! Fuckm yer Fascist SHIT SHIOW on STEROIDZ in the Hershey Highway with a Baseball bat!!! "GOP= Buncha MURDERING FUCKIN SAVAGES!!!"
@johnwilsonwsws Make no mistake, "I" ain't above this shit show, Knowingly/Unknowingly made a part of it. Only diff is that we are mature enough ta OWN/Be responsible fer my thoughts words-n-deeds. Really angers me when we awake to jus how far, how deep lays the Conditioning.
"Well that didnāt take long. President Trump has said he wants to āclean outā Gaza and relocate its population to US client states Egypt and Jordan, which would of course be a textbook case of ethnic cleansing. It would also align perfectly with longstanding Israeli agendas to remove Palestinians from their homeland so that their territory can be seized and settled by Jews.
Speaking with the press on board Air Force One on Saturday, Trump said he talked to Jordanās King Abdullah II about taking in large numbers of Palestinians from Gaza, and said he plans to speak with Egyptās president Abdel Fattah el-Sisi about doing the same.
āIād like Egypt to take people and Iād like Jordan to take people,ā Trump told reporters, saying the Gaza Strip is āa real messā and āliterally a demolition siteā.
āYouāre talking about probably a million and a half people, and we just clean out that whole thing,ā Trump said."
... show more
"Well that didnāt take long. President Trump has said he wants to āclean outā Gaza and relocate its population to US client states Egypt and Jordan, which would of course be a textbook case of ethnic cleansing. It would also align perfectly with longstanding Israeli agendas to remove Palestinians from their homeland so that their territory can be seized and settled by Jews.
Speaking with the press on board Air Force One on Saturday, Trump said he talked to Jordanās King Abdullah II about taking in large numbers of Palestinians from Gaza, and said he plans to speak with Egyptās president Abdel Fattah el-Sisi about doing the same.
āIād like Egypt to take people and Iād like Jordan to take people,ā Trump told reporters, saying the Gaza Strip is āa real messā and āliterally a demolition siteā.
āYouāre talking about probably a million and a half people, and we just clean out that whole thing,ā Trump said."
"Israelās 15-month war on Gaza has displaced almost all of its 2.3 million residents, some of them multiple times. Trump said Gazaās inhabitants could be moved ātemporarily or could be long termā.
āIt is literally a demolition site right now, almost everything is demolished and people are dying there,ā he said.
āSo, I would rather get involved with some of the Arab nations and build housing in a different location, where they can maybe live in peace for a change.ā
Later on Sunday, Jordanās Foreign Minister Ayman Safadi said that Ammanās āposition is that the two-state solution is the way to achieve peaceā.
He stressed that Jordanās ārejection of displacement is fixed and unchangeableā in an apparent veiled response to Trump."
Frieke
in reply to Johan Moir (Friendica) ā¢ ā¢ ā¢beautifully frased: "fairly stable at a very low level."
I'm getting there ... Stable and just maybe a bit higher baseline then a year ago.
Thx for your story š
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