L'Union européenne franchit une étape décisive dans la transformation numérique des soins de santé avec l'adoption du règlement sur l'Espace européen des données de santé (EHDS) le 21 Janvier 2025.

Ce texte novateur, ayant été une large majorité par le Parlement européen le 24 avril 2024, promet de redéfinir l'accès et le partage des informations médicales à travers le continent.

Au cœur de cette initiative se trouve la volonté de faciliter l'accès des citoyens européens à leurs données de santé électroniques, qu'ils se trouvent dans leur pays d'origine ou dans un autre État membre. Cette avancée majeure permettra non seulement une continuité des soins lors des déplacements au sein de l'UE, mais offrira également aux patients un contrôle accru sur l'utilisation de leurs informations médicales.

L'EHDS ne se limite pas à améliorer les soins individuels ; il ouvre également de nouvelles perspectives pour la recherche médicale et l'innovation en santé. En permettant aux chercheurs et aux décideurs politiques d'accéder à des données de santé sécurisées et anonymisées, le règlement promet d'accélérer le développement de nouveaux traitements, en particulier pour les maladies rares qui touchent 30 millions d'Européens.

La mise en œuvre de l'EHDS s'accompagne de garanties solides en matière de protection des données personnelles. Le règlement prévoit la création d'autorités de santé numérique dans chaque pays membre, chargées de veiller à l'application des nouvelles dispositions. De plus, les patients auront la possibilité de s'opposer à l'accès à leurs données, sauf pour des fins d'intérêt général strictement encadrées.

Avec une entrée en application progressive sur les 2 à 6 prochaines années, l'EHDS représente un défi d'adaptation pour les systèmes de santé nationaux, mais aussi une opportunité sans précédent. En harmonisant les réglementations à l'échelle européenne, ce règlement pose les fondations d'un écosystème de santé numérique plus intégré, plus efficace et plus innovant, promettant des avancées significatives dans la qualité des soins pour tous les citoyens européens.

Lien vers le nouveau règlement (en français) : data.consilium.europa.eu/doc/d…

#SantéNumérique #EHDS #InnovationMédicale #DonnéesDeSanté #UESanté #EHDS

From antihate.ca

"We can't let Trump style politics — attacking and scapegoating the most vulnerable — take over Canada.

That most Canadians want to have a fair, diverse, and equitable country is what makes us great. Of course we still have work to do.

But there are people fighting to ruin that.

We report on the far-right — movements that harbour racism and other forms of hate — because they hurt people and they are incompatible with our democracy.

Trump embraces the far-right. They fight in his name. They stormed the capital for him and he rewarded the J6 rioters with pardons.

There are Trump supporters here in Canada too. Activists who want to keep 2SLGBTQ+ books out of classrooms. Science deniers. People who want to deport our neighbours.

Some of them wave flags and disrupt school board meetings. Some of them wear suits and do politics.

Things are about to change dramatically in Canada, and not for the better. Keep an eye on your local school board and municipal elections. Connect with your community. Make sure that politicians who sound like Trump don’t get elected.

And check out our guides on How To Build an Anti-Hate City ( antihate.ca/how_to_build_an_an… ), or this one, on how to have a safe and effective demonstration against hate ( antihate.ca/pride_defence_guid… ).

Here’s how you can use libraries as a place to build community against the far-right ( antihate.school/libraries_site… ). Or how to resist when anti-2SLGBTQ+ candidates try to take over your local school board ( antihate.ca/pride_defence_guid… ).

From everybody at the Canadian Anti-Hate Network — thank you for your support.

Canadian Anti-Hate Network
antihate.ca/ "

#trump #nevertrump #uspol #uspolitics #worldpol #worldpolitics #antihate #canpol #canpolitics #abpol #abpolitics #enoughisenough

Generally, I don't allow Anon access to my stuff. Generally. I mean, it's a route to getting harassed and I've no interest in feeding trolls of any variety, so I default to No Anon Access... pretty much everywhere.

But I'm brand new here and thus allowing Anon people to see what (little) I've posted makes sense. No one's gonna follow a blank screen, you know?

So Anon now has access. We'll see how that goes. I may change that over time or I may explore the permissions thing. Well. I WILL explore the permissions thing but that can wait for, you know, day 3 or 4 or whatever.

Relatedly, I 99% of the time do not post my face online. I'm not fond of photos of me in the first place. My maternal grandmother was outright obsessed with taking pictures so much of my childhood memories feature me posing for roll after roll after roll of film to be taken. So very over that.

I don't want to be remembered for my face.

I want to be remembered for my stories.

My art. The way I interacted with people and the things I did. I'm solidly queer (aro/ace and agender) so my actual physical body is... never what I wish it were, in part because what I wish my body was shifts moment to moment, day to day.

Which explains a lot of what I write, actually. So many queer characters. So much figuring out of love and life and gender when the world is shifting around one.

And, apropos of world shifts of the Most Unwelcome kind, I think I'll do a bit of promo for one of my (far too many) series: Debts to Recover.

This is the series 2nd highest on the spice setting out of all the stories I've written. It's got BDSM (consensual and ...very not), both debt and outright slavery, billionaires as true lords over everyone else and violent resistance to them. All told through the little guy's eyes.

It's dark. I took the current day at the time and projected it in the Worst Timeline direction. Honestly, I can see this happening especially with those in charge in the USA now. It horrifies me. One of the stories is bloody, gruesome, full of torture and both of the characters involved see it as a love story, which is... my brain surprised me that day.

Either way, it's full of people getting knocked down and getting back up despite the pain, despite the trauma, despite the abject hopelessness of their situation. There are rich people (well, one rich man) who tries his damnedest to actually be a good person.

Seems appropriate to everything going on right now.

(And yes, you have to click through to your preferred site. Gotta get my Shopify store set up. It's on the list for 2025. I'm still gonna try and point people at my stories even though it's Not Done Yet.)

Right. I have Done a Promotion, in a place where no one is likely to see it. *laughs* But that's okay. Back to work for me.